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  #1  
Old 10-11-2024, 05:18 AM
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pawpawdiv9 pawpawdiv9 is offline
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Thanks for sharing
The cancer ride has been rough but I keep going
Hope you doing alright - which kind is yours?
I visit my next month and very nervous after my treatments
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  #2  
Old 10-11-2024, 05:36 AM
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SyrNy1960 SyrNy1960 is offline
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Quote:
Originally Posted by pawpawdiv9 View Post
Thanks for sharing
The cancer ride has been rough but I keep going
Hope you doing alright - which kind is yours?
I visit my next month and very nervous after my treatments
Chris,

Thoughts and prayers are with you!
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  #3  
Old 10-11-2024, 09:32 AM
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Quote:
Originally Posted by pawpawdiv9 View Post
Thanks for sharing
The cancer ride has been rough but I keep going
Hope you doing alright - which kind is yours?
I visit my next month and very nervous after my treatments
I have had more surgeries than I can count, but doing very well right now. 2010 was stage 3 colon cancer and was a removal of 80% of my large intestines. In 2020, it returned full force and was colorectal cancer. I was given an illeostomy and had basically the remainder of my colon, rectum, and all other parts to be polite removed. I have a rear like a gi Joe figure now, lol.

It was a hell of an experience and I had to relearn to walk due to the depth of the surgery. That said, I just have to use a cane occasionally now. And things are looking good that I will keep puttering along.

My survival has been a bit of luck and being stubborn as shit that I will attend my son’s wedding someday and see my future grandchildren. They have told me to get my affairs together and arrangements made about four times now. But I am still here and not giving up. Now I just have to go in every six months for a cat-scan and full testing, I actually just did that Wednesday. I also get MRIs at least yearly or if the specialists feel necessary. As long as they keep giving me the thumbs up, I put those worries to the back burner. You can be a sad sack and fear something that may or may not happen which I have fallen prey to at times. But now I do my best to hope for best instead of constantly thinking about the worst and my life is a ton better.

I would also recommend joining a local group of survivors and patients. I found one on the net and attend monthly. It really fights the woe is me depression when you are in a room of people that genuinely understand and can help you with your questions. My support group has been the best move I have made in the past few years and has given me some great friends.
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Player collecting - Lance Parrish, Jim Davenport, John Norlander.

Successful B/S/T with - Highstep74, Northviewcats, pencil1974, T2069bk, tjenkins, wilkiebaby11, baez578, Bocabirdman, maddux31, Leon, Just-Collect, bigfish, quinnsryche...and a whole bunch more, I stopped keeping track, lol.

Last edited by JustinD; 10-11-2024 at 09:34 AM.
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  #4  
Old 10-11-2024, 01:02 PM
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Awh crap bro. Thats horrible. Mine is nothing compared to what you went thru.
Tho i had 2 Turbt surgerys and numerous cystocopys and catheters.
Hopefully i continue my BCG treatments (immunotherapy) and not deal with another surgery or worse, removing the bladder.
I have a FaceBook group i discuss with others doing the same thing, it does help.
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  #5  
Old 10-12-2024, 09:25 AM
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I am one of the 'lucky' subgroup who cannot tolerate the side effects of semaglutides. I would take a shot on Sunday and basically not stop feeling like I was going to puke until Thursday. And that was at the lowest dose. I go to a concierge doc, so I get the care I need for as long as it takes. We really tackled this situation carefully, explored all the drugs, customized a diet, etc. Anyway, after the SG1 termination (it took 2 months to completely clear my system, BTW; random diarrhea would hit me with significant urgency), we went back to a low carb, high veggie diet. I started the SG1 at 267, went down into the mid-240s on it, went back to 262 off it, and now down to 252 after a few weeks weeks on low carbs. Once i can work out again (I broke my left foot and have been bootin' & scootin' for 7 weeks; out of the boot yesterday, but not cleared to fully work out yet), the weight loss should accelerate. I don't even care where it ends up, as long as the bloodwork improves.
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  #6  
Old 10-12-2024, 02:51 PM
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Quote:
Originally Posted by pawpawdiv9 View Post
Awh crap bro. Thats horrible. Mine is nothing compared to what you went thru.
Tho i had 2 Turbt surgerys and numerous cystocopys and catheters.
Hopefully i continue my BCG treatments (immunotherapy) and not deal with another surgery or worse, removing the bladder.
I have a FaceBook group i discuss with others doing the same thing, it does help.
Everything is different for everyone, it’s never a contest to see who has it worse. I know numerous people with urostomies and while they are are an adjustment, it’s not the end of everything…more of a new beginning. I hope the best, but even if they have to go extreme. You will still be able to live a normal but different life. The cancer is the battle and I wish you all the best buddy.
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Player collecting - Lance Parrish, Jim Davenport, John Norlander.

Successful B/S/T with - Highstep74, Northviewcats, pencil1974, T2069bk, tjenkins, wilkiebaby11, baez578, Bocabirdman, maddux31, Leon, Just-Collect, bigfish, quinnsryche...and a whole bunch more, I stopped keeping track, lol.
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  #7  
Old 10-23-2024, 03:12 PM
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pawpawdiv9 pawpawdiv9 is offline
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Had blood work the other day
A1C down to 5.5
Glucose to 90
Also got my blood pressure down in 130/80 range now
Was hitting 190-200/upper 90s at the hospital
Supper happy
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  #8  
Old 10-23-2024, 04:17 PM
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Quote:
Originally Posted by pawpawdiv9 View Post
Had blood work the other day
A1C down to 5.5
Glucose to 90
Also got my blood pressure down in 130/80 range now
Was hitting 190-200/upper 90s at the hospital
Supper happy
Wow! Congrats 🎉 So happy for you!
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  #9  
Old 10-24-2024, 09:28 AM
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Quote:
Originally Posted by pawpawdiv9 View Post
Had blood work the other day
A1C down to 5.5
Glucose to 90
Also got my blood pressure down in 130/80 range now
Was hitting 190-200/upper 90s at the hospital
Supper happy
That is great!
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  #10  
Old 10-24-2024, 11:17 AM
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pawpawdiv9 pawpawdiv9 is offline
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Thanks guys
Gotta still think positive next month
for my results after my bcg treatments I had
on my bladder
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