View Single Post
  #6  
Old 08-20-2023, 04:08 PM
jethrod3 jethrod3 is offline
Member
 
Join Date: Jul 2022
Posts: 331
Default

Tony, I'm sorry to hear of this. A couple of things that you probably know but are worth saying. This is based on my experience with my mom, who had fairly early onset AD that then rapidly progressed.

I'm sure you are doing the best you can. Please don't beat yourself up over not spotting the early signs of AD, because the meds you mentioned do not work for everyone. My mom was on those meds, and started early. They did not work. Even in the folks that those meds do SEEM to help, the reading I did at the time seemed to indicate that the delay in progression is often not long anyway. People progress at different rates; that's probably why it's difficult to attribute success or failure to some drugs. But they were the best that we had. Recent clinical trials with a new generation of drugs suggest that there may be hope for those with even more advanced cases, so of course we hope for that day when these drugs become available to all patients with AD.

As someone else mentioned, do take care of yourself (let others help you when needed) and also seek out a lawyer that specializes in elder law. They can walk you through what you need to do while your wife is still able to make decisions. And most of all, even though the disease is cruel and unrelenting, take time to enjoy the good moments that will still surface, likely even through the later stages of progression of the disease.

Thank you for your post.
Reply With Quote