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  #1  
Old 12-07-2016, 07:34 AM
Snapolit1's Avatar
Snapolit1 Snapolit1 is offline
Ste.ve Na.polit.ano
 
Join Date: Oct 2015
Posts: 5,877
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Quote:
Originally Posted by RichR View Post
Hi everyone!

I just wanted to give everyone a quick update.

So after having radiation done a second time on the two brain tumors* without positive results my doctors decided to reach out to MD Anderson to discuss other possible treatment options and they recommended a non invasive brain surgery option

So after a 3 month struggle with the insurance company (MD Anderson is out of network) I was finally able to met with the doctor and now will be in Houston for the week of Dec. 12th. to have the surgery.

If anyone is curious here is a link to the MD Anderson site that discusses the surgery and a podcast which goes into the procedure in more detail.

https://www.mdanderson.org/treatment...l-therapy.html

A big reason for this post is that I really want to help spread the news about this surgery as the news about it has not spread widely among the cancer community and it looks like it has broad positive implications for anyone with almost any type of brain cancer. So if you know anyone who is dealing with brain tumor issues please pass this information along and/or have them contact me at focusinvestor at yahoo dot com.

Thanks again all!
It sounds like you are getting the best medical care possible in a top notch place. Best wishes coming your way from New Jersey. I'd say be strong and fight the good fight but you already sound a lot stronger than I'd think I'd ever be. Please keep us all informed.
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  #2  
Old 12-07-2016, 11:39 AM
56Horsehide 56Horsehide is offline
J!m Be@m
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Join Date: Aug 2016
Location: Iowa
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I am new to net54 and just read this thread from the beginning. First, I am so sorry this has happened and will pray strongly for you, your family, and loved ones. It looks like you have beat the odds to date and I am betting that will continue. May God grant strength and wisdom to those treating you and may the results of your upcoming surgery be totally positive in every respect. Tale care and God Bless!

Jim
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  #3  
Old 02-08-2017, 06:08 PM
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ZiggerZagger ZiggerZagger is offline
Jason B.
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Join Date: Sep 2014
Location: Columbus, OH
Posts: 808
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Quote:
Originally Posted by RichR View Post
Hi everyone!

If anyone is curious here is a link to the MD Anderson site that discusses the surgery and a podcast which goes into the procedure in more detail.

https://www.mdanderson.org/treatment...l-therapy.html

A big reason for this post is that I really want to help spread the news about this surgery as the news about it has not spread widely among the cancer community and it looks like it has broad positive implications for anyone with almost any type of brain cancer. So if you know anyone who is dealing with brain tumor issues please pass this information along and/or have them contact me at focusinvestor at yahoo dot com.

Thanks again all!
Rich--

I wanted to thank you for posting for both human and medical reasons. You've got tenacity and faith in abundance, which is all you need.

The LITT technology is really great, so thanks for hyping it. I'm part of a 4-physician team using LITT for Epilepsy Surgery as well, and we love the minimally invasive nature of it.
We are also partnered with MD Anderson and 75% of our use of the device is for brain tumors like yours.
The future is here, and I hope it can benefit you and many other patients out there as well.

Our first case was the woman featured in this article -- a wonderful Pastor here in Columbus. Very pleased to say that she is seizure-free and loving life. I wish you the same success!
http://www.dispatch.com/content/stor...-invasive.html

Our greatest challenge is getting the word out to prospective patients who would benefit, so thanks for your advocacy!
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